Beyond the Build – A Rare Journey with Ines and James

In this heartfelt episode of Product Pals, Charlotte and Kiet sit down with design lead James Riddell and product leader Ines Goluza, the inspiring team behind Rare Journey — an AI-powered health companion app built to support families navigating rare diseases.After the birth of his son Felix and his diagnosis with the ultra-rare Myhre Syndrome, James, along with his partner Ivana and sister-in-law Ines, channelled their personal experience into building Rare Journey and co-founding the Myhre Syndrome Foundation Australia. What began as a family crisis quickly became a bold mission to support others through empathy-driven tech.💡 What you’ll hear:Felix’s diagnosis and the origin of Rare JourneyWhy community knowledge is a superpower in healthcareBuilding under pressure: hospital rooms to MVP in 6 monthsApplying product and design thinking in the real worldReflections on scaling, funding, and staying mission-ledTo find out more about their stories visit:Myhre Syndrome Foundation Website: ⁠https://myhresyndromeaus.org/⁠ Rare Journey: ⁠https://www.therarejourney.com/⁠Other Resources:Ronald McDonald House Foundation https://rmhc.org.au/