Beyond The Diagnosis #41: Don't Fight Ichthyosis, Fight For Your Rights

Ichthyosis is a rare, genetic condition that causes a person to have dry, scaly skin. But this textbook definition fails to capture the persistent misconceptions and stigma faced by people with ichthyosis. On Beyond The Diagnosis, Mohd Firdaus Mehat, Chairman & Founder of Pertubuhan Kebajikan Pesakit Ichthyosis Malaysia (PEKIM), joins us in a candid conversation about the realities of living with ichthyosis and how his support group helps families learn about managing the condition. Beyond The Diagnosis is a series that goes beyond a medical diagnosis to explore people’s personal experiences, their challenges, as well as the impact of their health condition on their loved ones. This episode was produced in collaboration with Suriana Welfare Society, which is supporting individuals and families affected by rare diseases through advocacy and fundraising.See omnystudio.com/listener for privacy information.