Beyond the Diagnosis: Clinical Trial Advocacy & ALS

Hear the inspiring story of Larry Falivena, an ALS patient advocate, who shares his journey through his ALS diagnosis and navigating clinical trials. Larry's diagnosis in 2017 marked a profound shift in his life, prompting him to cherish each moment and advocate for ALS awareness. Despite the grim prognosis, Larry's engagement in clinical trials offers hope for ALS patients. Hear the emotional and logistical hurdles often faced by ALS patients in accessing and engaging with clinical trials and how the industry can improve the patient experience. As we reflect on his journey, Larry's insights inspire us to collectively improve patient outcomes by overcoming barriers to trial participation. His story highlights the critical role of patient involvement in research and the need for accessible trials.