EPISODE · May 21, 2024 · 1H 6M
Bonus Episode with Melanie Colter, Shaina Shapiro, and Julie Sullivan
from HC&U · host Ben and Lindsey Massengale
In this bonus episode of HC&U, we present HCU Network America's live panel discussion called "Navigating the Maze" for World Homocystinuria Awareness Day. We discuss the complex journey of diagnosis and treatment with Melanie, Shaina, and Julie. We wrap up with Lindsey's Low-Pro Bitessss. We sound a call to arms for our community! We hope you enjoy! Please share the podcast and give us a 5 star rating and review! Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter Email the podcast! HCU Network America on Twitter Everylife Foundation for Rare Diseases Rare Disease Legislative Advocates (RDLA) What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
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Bonus Episode with Melanie Colter, Shaina Shapiro, and Julie Sullivan
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