Breaking the Silence: Harjeet Kaur on Rare Cancer, Cultural Stigma, and Turning Pain into Purpose

Episode SummaryIn this powerful episode of Amplify: Elevating Patient Voices, Harjeet Kaur shares her journey through an ultra-rare stage IV blood cancer—subcutaneous panniculitis-like T-cell lymphoma (SPTCL)—and the life-altering moments that followed. From months of unexplained symptoms and relentless advocacy for answers, to undergoing a stem cell transplant during the height of COVID-19, Harjeet’s story is one of resilience, courage, and survival. But her journey goes beyond the medical. As a South Asian woman, Harjeet opens up about the cultural silence surrounding cancer, the stigma she faced, and the emotional weight of navigating illness without open conversations. Today, she is using her voice to break that silence—advocating for awareness, representation, and more inclusive support systems for patients from underrepresented communities.Why You Should Listen To hear a deeply human story of survival, strength, and transformation  To understand how culture and stigma can shape the cancer experience  To learn why patient advocacy—especially self-advocacy—can be life-saving  To gain insight into the challenges faced by young adults and immigrants navigating healthcare systems  To be inspired by how one voice can create impact, build community, and drive changeEpisode Highlights00:00 – Introduction to Harjeet’s ultra-rare cancer journey03:39 – Early symptoms and being dismissed as “just a viral illness”06:02 – Months without answers—and fighting to be heard07:50 – The life-changing moment: stage IV cancer diagnosis at 3210:37 – Emotional impact and silent suffering14:47 – “I want to live”: facing limited treatment options15:47 – Choosing a stem cell transplant—and her brother as donor17:37 – Transplant during COVID and complete isolation19:32 – Cultural stigma and silence around cancer in South Asian communities24:47 – Turning pain into purpose: advocacy and building Chai & HopeResources & Links Patient Voice Partners: https://patientvoicepartners.com Young Adult Cancer Canada (YAC)  Canadian Cancer Society  Harjeet Kaur on Instagram: https://www.instagram.com/harjeetkaur Chai & Hope (South Asian Cancer Community) https://www.instagram.com/chaiandhopeMedical Disclaimer:The content shared on Amplify is for informational and educational purposes only.Nothing discussed on this podcast—including stories, experiences, perspectives, or commentary from hosts, guests, or contributors—should be interpreted as medical advice, diagnosis, or treatment recommendations.Always seek the guidance of your physician or other licensed provider with any questions regarding your health, medical conditions, or treatment options.