Building the SYNGAP1 SRF House - using the Milken Fastercures Research Partnership Maturity Model - #S10e98

Milken Fastercures RPMM - So much strong work and thinking here! https://milkeninstitute.org/centers/fastercures/train/toolkits/RPMM  - Three floors: Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible. - St. Francis of Assisi  - Cool Tweet: https://twitter.com/LindsayOkamoto/status/1639017493007335425?s=20  Why we need a house? www.fpwr.org - www.jdrf.org - www.runx1-fpd.org  Press is key!  Congrats to Peggy https://www.newsandtribune.com/news/clark_county/floyd-family-seeks-to-lessen-funding-gap-for-rare-genetic-disorder/article_d16460f4-c8f8-11ed-a60c-170e5bfff4d6.html  Amazing Webinars - Jillian McKee - April 27th - https://syngap.fund/mckee  Ciitizen SYNGAP1 count is at 211! Sign up or Update your Ciitizen Records - Sign-UP https://ciitizen.com/syngap1  - Sign-IN https://app.ciitizen.com/ #Sprint4Syngap - 36 days, April 29, 2023 - https://syngap.fund/sprint - Fundraising page: https://secure.givelively.org/donate/syngap-research-fund-incorporated/sprint4syngap-2023  #MDBRSRF - 79 days - June 10, 2023 syngap.fund/mdbr23 #SyngapConf - 252 days - book now, November 30, 2023 - Conf pre-registration link: Syngap.Fund/2023conf  - We have signed with a hotel/venue, please stay tuned for room link - Large Latin Contingent too, just another this morning. There is so much work to do, volunteer [email protected]  This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here  - https://www.syngapresearchfund.org/syngap10-podcast Apple podcasts:  https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818 Episode 98 of #Syngap10 - March 23,  2023  #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat