CF Parenting Stories:  3 Voices, 3 Perspectives (Part 1) episode artwork

EPISODE · Aug 29, 2025 · 57 MIN

CF Parenting Stories: 3 Voices, 3 Perspectives (Part 1)

from It's a Lung Story: Aging and Cystic Fibrosis · host Dr. Ahmet Uluer and Lauren Harvey

As more people with cystic fibrosis have the chance to become parents (because for the first time, many are living long enough to consider it), Ahmet Uluer, DO, MPH, Lauren Harvey, and Andrea Gavin Becker are asking what that looks like. In "CF Parenting Stories: 3 Voices, 3 Perspectives" (Part 1), we talk with three parents with CF—Abi, Mike, and Morgan—each navigating a different version of family life with CF in the mix. They explore exhaustion, decision fatigue, burnout, and shifting roles. They also share how they explain CF to their kids—what they say, what they leave out, and how those conversations evolve over time. There’s transparency about what’s working, what they’ve learned through trial and error, how parenting changes when your health isn’t a given, and how modulators have changed the picture for some, but not for others. From travel-day chaos to a Scooby-Doo impression you won’t want to miss, this episode brings humor, honesty, and a deep sense of lived experience—whether you’re parenting, considering it, or just curious what it takes. Find our guests' complete bios on Instagram: Morgan Barett: @morganbarrett__ Abi Halstead: @abihalstead Mike Shapiro: @mmjlshapiro Resources: NACFC 2025 presentation by Dr. Ahmet Uluer and Dr. Karen von Berg: “A Breath of Fresh Age: Redefining Growing Older With Cystic Fibrosis” https://www.youtube.com/watch?v=OHg8Pr0J8_o The content presented in this podcast is for informational and educational purposes only, and is not intended as medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition.

Episode metadata supplied by the publisher feed · Published Aug 29, 2025

Embed this episode

Ready to play

CF Parenting Stories: 3 Voices, 3 Perspectives (Part 1)

0:00 57:27

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

No similar episodes found.

No similar podcasts found.

Frequently Asked Questions

How long is this episode of It's a Lung Story: Aging and Cystic Fibrosis?

This episode is 57 minutes long.

When was this It's a Lung Story: Aging and Cystic Fibrosis episode published?

This episode was published on August 29, 2025.

Can I download this It's a Lung Story: Aging and Cystic Fibrosis episode?

Yes. Use the download control on the episode player to save the publisher-provided media file.
URL copied to clipboard!