EPISODE · Aug 2, 2022 · 51 MIN
CForYourself: Parenting children with CF
from CForYourself: A podcast from Cystic Fibrosis Trust · host Cystic Fibrosis Trust
Families experience and cope with CF in a number of different ways. The journey is not always predictable or easy, and every child and every story is different. In this episode of CForYourself, our host Lucy enjoys a (virtual) cuppa with Lizzy, mum to 16-year-old Isaac, who has cystic fibrosis. Lizzy talks openly and honestly about her personal experiences of parenting, what she's learned along the way, her advice for other families, and her hopes for Isaac's future. We also hear from paediatric clinical psychologist Michèle Puckey, who shares her top tips for talking to a child about CF.If you have questions about any of the topics raised in this episode, we're here for you. You can call our Helpline on 0300 373 1000, or email [email protected]. CF: What's it all about? - watch our new animation, which is here to help children, their siblings and friends understand the condition in a fun and interactive way. New diagnosis parent information pack - a series of resources to help families who have just found out that their child has cystic fibrosis.Helping your child with a physical health condition by Mandy Bryon and Penny TitmanMy Merry Moly World - Lizzy's blog CF Forum - Join the conversation on our Forum and connect with other parents.Research that’s underway that could help those who don’t benefit from CFTR modulators
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Families experience and cope with CF in a number of different ways. The journey is not always predictable or easy, and every child and every story is different. In this episode of CForYourself, our host Lucy enjoys a (virtual) cuppa with Lizzy, mum to 16-year-old Isaac, who has cystic fibrosis. Lizzy talks openly and honestly about her personal experiences of parenting, what she's learned along the way, her advice for other families, and her hopes for Isaac's future. We also hea...
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CForYourself: Parenting children with CF
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