Connie Boyer on Fast-Track Diagnosis, Research, and Surgery Outcomes with Lipedema

Connie Boyer on Fast-Track Diagnosis, Research, and Surgery Outcomes with Lipedema Hosts Cindy and Kristy welcome Connie Boyer, an Amazon senior program manager and education lead and board member of the American Lipedema Association, to discuss her lipedema journey and advocacy. Connie reflects on early signs such as bruising, painful boot shopping, “thunder thighs,” and possible hypermobility, noting family patterns and dynamics around body shape. She describes learning about lipedema through a St. Louis NPR interview with Dr. Wright, using linked scientific resources to prepare her PCP, and receiving a quick diagnosis in 2022, followed by PT, decongestion, a Washington University metabolic study with MRI/DEXA and punch biopsy, and eventually five surgeries with Dr. Wright that improved mobility and reduced pain. Connie shares practical advice on compression, leg elevation and ADA work accommodations, anti-inflammatory eating, and sending documentation to providers in advance.00:00 Show Introduction00:55 Meet Connie Boyer02:03 ALA Shirts and Advocacy02:38 Early Signs and Family Clues07:12 Boot Struggles and Body Proportions09:33 Diagnosis Journey Begins09:55 NPR Discovery and Fast Diagnosis14:29 Treatment Progress and Research Study19:14 Finding Supportive Care Team20:29 Self Advocacy With Providers22:35 Surgery Results and Relief24:42 Mobility Wins and Travel Freedom25:38 Joining the American Lipedema Association29:26 Punch Biopsy and Seeing Tissue32:14 Practical Advice Compression and Work36:49 Advocacy Resources and Accommodations38:01 Closing Thanks and Wrap UpFollow us on Social media!!!Kristy's Contact information:IG⁠⁠⁠ ⁠⁠https://www.instagram.com/dellalunawellness/⁠FB Group⁠⁠ ⁠⁠https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr⁠⁠⁠⁠Website is below  Kristy Dellacroce, MS,OTR/L, MLD-C⁠⁠ Dellalunawellness.com⁠⁠⁠⁠⁠⁠Lipedema Advocate 856-297-7437Cindy contact information⁠FB:⁠ ⁠https://www.facebook.com/withcindyhowell⁠⁠⁠Private FB Group:⁠⁠⁠ ⁠https://www.facebook.com/groups/7021999704562921⁠⁠⁠⁠IG:⁠⁠⁠ https://www.instagram.com/lipedema_withcindyhowell/⁠Cindy Howell RN PHC MPCHWebsite:⁠ ⁠⁠⁠www.withcindyhowell.com⁠⁠⁠⁠Lipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link:⁠ https://withcindyhowell.com/checklist/⁠Free surgery course: ⁠⁠https://l.bttr.to/6cATB⁠Connie Boyerhttps://www.instagram.com/constanceboyer/https://l.instagram.com/?u=http%3A%2F%2Fconstanceboyer.com%2F%3Futm_source%3Dig%26utm_medium%3Dsocial%26utm_content%3Dlink_in_bio%26fbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGnNXuUYvzbd5KXfqgE5AWXuBD6T-Iz8Fl9IRCCD1b15VUlRyOScpzg1mWlkt4_aem_3ZHtHtWFtcuNRPxbfTQaYg&e=AT5QLZxhLLPbh6GMbPta52x3L9eEWAk_jkmViFUq1EtozafKJY2t3YmqSKVAKXaAyfcFoPBr0vGUsrfeFY19vKAC82393wUCCyzYR8Bsng