Coping with Long Term Effects: Tips for Living with cGVHD

from Marrow Masters · host Stacey Prieur-RN

• I’m Home: What do I do now regarding seeing a doctor. • Be your own advocate • Notice the little things, over report symptoms to your center • Forever fatigue covered: (Learn more about Light Therapy by visiting • Your New Normal: Check out the LINK's award winning DVD. • Finding your way: new crossroads • Embrace living • The painfulness of cGVHD discussed • Photopheresis, ECP: Click here for more on photophersis • Your caregiver: the forgotten one • Meditation and mindfulness • Depression and anxiety covered • Fear of getting cGVHD: Education is key • Even after all I have seen, yes, I would get a transplant! • Did you know more and more older people getting transplanted today? National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment.  It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK.  Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What this episode covers

Coping with Long Term Effects: Tips for Living with cGVHD Stacey Prieur, RN, BMT Coordinator, Karmanos Cancer Institute (This podcast series is sponsored by The National Bone Marrow Transplant Link, Incyte Corporation and our esteemed Link Partners.) The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. The listed resources are not intended to be endorsements.

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Coping with Long Term Effects: Tips for Living with cGVHD

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This episode was published on July 30, 2019.

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