Cure Mito Foundation: The Importance of Patient Registries episode artwork

EPISODE · Jul 16, 2021 · 24 MIN

Cure Mito Foundation: The Importance of Patient Registries

from Wait, How Do You Spell That? A Rare Disease Podcast · host Patient Worthy

In this episode, we discuss Leigh Syndrome, a rare mitochondrial disease, with Kasey Woleben and Sophia Zilber of the Cure Mito Foundation. We talk about the importance of patient registries and how rare disease patients and families band together to work for a better future. To learn more about Leigh Syndrome and the Cure Mito Foundation, visit their website at www.curemito.org.

Episode metadata supplied by the publisher feed · Published Jul 16, 2021

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Cure Mito Foundation: The Importance of Patient Registries

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