EPISODE · Jul 16, 2021 · 24 MIN
Cure Mito Foundation: The Importance of Patient Registries
from Wait, How Do You Spell That? A Rare Disease Podcast · host Patient Worthy
In this episode, we discuss Leigh Syndrome, a rare mitochondrial disease, with Kasey Woleben and Sophia Zilber of the Cure Mito Foundation. We talk about the importance of patient registries and how rare disease patients and families band together to work for a better future. To learn more about Leigh Syndrome and the Cure Mito Foundation, visit their website at www.curemito.org.
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Cure Mito Foundation: The Importance of Patient Registries
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