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EPISODE · Jul 16, 2021 · 24 MIN

Cure Mito Foundation: The Importance of Patient Registries

from Wait, How Do You Spell That? A Rare Disease Podcast · host Patient Worthy

In this episode, we discuss Leigh Syndrome, a rare mitochondrial disease, with Kasey Woleben and Sophia Zilber of the Cure Mito Foundation. We talk about the importance of patient registries and how rare disease patients and families band together to work for a better future. To learn more about Leigh Syndrome and the Cure Mito Foundation, visit their website at www.curemito.org.

What this episode covers

In this episode, we discuss Leigh Syndrome, a rare mitochondrial disease, with Kasey Woleben and Sophia Zilber of the Cure Mito Foundation. We talk about the importance of patient registries and how rare disease patients and families band together to work for a better future. To learn more about Leigh Syndrome and the Cure Mito Foundation, visit their website at www.curemito.org.

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Frequently Asked Questions

How long is this episode of Wait, How Do You Spell That? A Rare Disease Podcast?

This episode is 24 minutes long.

When was this Wait, How Do You Spell That? A Rare Disease Podcast episode published?

This episode was published on July 16, 2021.

What is this episode about?

In this episode, we discuss Leigh Syndrome, a rare mitochondrial disease, with Kasey Woleben and Sophia Zilber of the Cure Mito Foundation. We talk about the importance of patient registries and how rare disease patients and families band together...

Can I download this Wait, How Do You Spell That? A Rare Disease Podcast episode?

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