Dad to Dad 175 - Dr. Harsha Rajasimha, Founder of Jeeva Informatics, Lost A Child To Edwards Syndrome (AKA Trisomy 18) Shortly After Birth

Our guest this week is Dr. Harsha Rajasimha of Herndon, VA who is the father of three as well as CEO and Founder of Jeeva Informatics, a human-centric software as a service, also known as SaaS, enabling clinical research at scale. Harsha and his wife, Ashwini, have been married for 16 years and are the proud parents of three daughters: Amulya (14), Mytri (7) and middle daughter Kahushi who, very sadly, died in 2012, shortly after birth due to Edwards Syndrome, also known as Trisomy 18, which is a rare congenital disorder.Harsha is also founder of Indo-US Organization For Rare Diseases, a non-profit focused on accelerating therapies for rare diseases by building collaborative bridges between the USA and the Indian subcontinent for education, advocacy and research.It's an uplifting story about a father's love for his family and how his heart has been shaped bya daughter's death. That’s all on this Special Fathers Network Dad to Dad Podcast. Jeeva Informatics - https://jeevatrials.com Indo-US Organization For Rare Diseases - https://indousrare.org LinkedIn – https://www.linkedin.com/in/harsharajasimha/Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations. Special Fathers Network: https://21stcenturydads.org/about-the-special-fathers-network/Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA Please support the SFN. Click here to donate: https://21stcenturydads.org/donate/