Dad to Dad 243 - Christian Paddock of Seattle, WA Reflects On The Loss Of His Daughter Who Had STXBP1, A Rare Neurological Disease

Our guest this week is Christian Paddock of Seattle, WA who is a coporate trainer for Audi of America.Christian and his wife, Megan, have been married for 10 years and are the proud parents of two girls, Addison (5) and Hazel, who was diagnosed with STXBP1, a rare neurological disease. Very sadly Hazel passed away at age six in 2021, as the result of a random accident. Christian reflects on the six year odyssey of raising a child with a complex medical condition, the highs as well as lows, and the tragic loss of their beautiful daughter. We’ll hear how Christian and Megan have met the challenges, dealt with tgrief, grown from this horrible tragedy, found some comfort through organ donation, and put the experiences into perspective. That’s on this week’s Special Fathers Network Dad to Dad Podcast.Show Links -Email – [email protected] – https://www.linkedin.com/in/christianpaddock/STXBP1 Foundation – https://www.stxbp1disorders.org/what-is-stxbp1Facebook Hazel On The Move – https://www.facebook.com/HazelOnTheMove Life Center NW - https://www.lcnw.org Washington State Fathers Network - https://fathersnetwork.org/Project Possiible - Projectpossible.orgBook - Healing the Shame That Binds You, by John Bradshaw - https://tinyurl.com/bdz2jfetSpecial Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channe... Please support the SFN. Click here to donate: https://21stcenturydads.org/do...Find out about Horizon Therapeutics – Science and Compassion Working Together To Transform Lives. https://www.horizontherapeutics.com/Special Fathers Network: https://21stcenturydads.org/Please donate to 21CD to keep our resources free to all concerned: https://21stcenturydads.org/donate/