Dads helping daughters with hemophilia

Ivan Giron helped advocate for his daughter Naomi to gain a diagnosis and ongoing treatment after learning more about women having a bleeding disorder. After Ivan realized that his daughter was having abnormal bleeding during her minstrel cycle each month, they started to educate themselves on how the genetic disorder could be passed down to his daughter, and while it looked different for her than it did for him, her need for treatment became more focused after further research. Ivan and Naomi have grown closer together as a family and are now on a mission to advocate for other women to challenge outdated clinical standards for women with bleeding disordersThis episode was made possible by an unrestricted educational grant provided by Genentech. Hope Charities is a national nonprofit focused on helping people living with rare and chronic illnesses thrive. Our programs specialize in helping people with genetic bleeding disorders and #hemophilia navigate the challenges of invisible disease by providing emotional, educational, and tangible support. To learn more about our programs visit our website www.hope-charities.org. Audio versions of this podcast are available on Spotify, Apple, iHeart radio and anywhere you listen to podcasts. Subscribe to our podcast to listen to more inspiring interviews like this today. Spotify:https://open.spotify.com/show/7mHb8FnlHmOz0PBcv6kQ8p?si=hlBA_VPsTmaJTbOmkQyvNgApple:https://podcasts.apple.com/us/podcast/hope-charities/id1613823273iHeart:https://www.iheart.com/podcast/269-hope-charities-93979933/#chronicillness#bleedingdisorders #WomenBleedToo #youarenotalone#hemophilia #HemoGlo#advocate#healthcareSupport the show