DANCEing: Beyond Seizures: Supporting Caregivers! - Simona Giorgi, Dravet Foundation EU, Spain

Dr. Simona Giorgi from Dravet Syndrome Foundation Spain shares their preclinical and clinical studies, epidemiological research, and their development of tools to support caregivers and people affected by Dravet! Highlighted are the needs for greater awareness among healthcare professionals about the capabilities of patient advocacy groups and the invaluable psychological support they can provide to families. ------------------------------------------ 🔗 European Dravet Syndrome Conference 2025 https://www.epilepsysparks.com/conferences/european-dravet-syndrome-conference-madrid ------------------------------------------ 🔗 Website & more about Simona: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/simona-giorgi-dance-dravet-epidemiology-support  ----------------------------------------- Chapters 📖 00:00 Intro 00:00 Meet Simona & Dravet Syndrome Foundation Spain 02:48 Research Initiatives and Collaborations 06:07 Understanding Epidemiological Studies 08:58 Tools for Caregivers and Patients 11:57 Awareness and Support for Families 15:04 Future Directions 00:00 Conclusion & Thanks ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks    - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social   - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks - Threads https://www.threads.net/@epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks - YouTube https://www.youtube.com/@EpilepsySparksInsights    #rareepilepsy #Dravet #epidemiology #neuropsychiatric #carer #caregiver