Danjela

Danjela received her diagnosis of Vascular Ehlers-Danlos syndrome, or VEDS, just two months prior to the recording of this podcast. After her mom suddenly died of an aortic rupture, Danjela started researching and discovered Vascular EDS. She pushed her doctors for genetic testing, which took a couple months of convincing, but her test results came back positive for VEDS and she is the only one in Austria that she knows with VEDS. Danjela always felt like there was an underlying condition that affected her, her mom, and her grandfather, so when she received her diagnosis, it was a relief to know and be able to prepare for emergencies and adjust parts of her care plan. She has continued to live her life passionately, and shares her story of carotid artery dissections and close calls with incredible positivity.