Darren Radke's Experience Living With Lupus and Antiphospholipid Syndrome

Episode 40: Darren Radke's Experience Living With Lupus and Antiphospholipid Syndrome   In this episode, guest Darren Radke shares his experience living with Lupus and Antiphospholipid Syndrome. He also was diagnosed as a having a hippocampal cyst in his brain, an issue with a heart valve, and a lung issue. His symptoms initially came on really fast, but doctors couldn't figure out what was going on. He was eventually found to have 2 blood clots. He was immediately placed on blood thinners. He was diagnosed at that time with Lupus, but there was no mention of APS. Years later, he had 3 seizures. He was treated for epilepsy. Years later, a doctor had an inkling that he had APS, and within 5 months, he was diagnosed with APS. Challenges include fatigue, joint pain, cognitive decline, emotional changes, loss of his job, and trouble with finances. He detailed some negative experiences with his first neurologist. He often didn't feel heard by his doctors. Treatments included staying active, eating a high protein diet, listening to music. His condition has affected his cognitive abilities, he cannot balance a checkbook, he limits his driving, he gets dizzy frequently so he has to limit going out, has lost interpersonal skills, and not feeling useful to others. He discussed his experience with social isolation.     Links: Deceived From Within: Living With APS and Lupus Website   Website Facebook Instagram Email Twitter     Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast. Hosted by: Jessica Temple  Music by Antarcticbreeze Music Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Listeners should always consult their health care provider for medical advice, medication, or treatment. Copyright 2021 Jessica Temple