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Sep 22, 2026 27 min

Decentralized Clinical Trials (1/3)

from HC&U Hosted by Ben and Lindsey Massengale

Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America. We hope you enjoy this new, limited series brought to you in conjunction with Science 37 and Travere Therapeutics. This will be a 3 part series focused on decentralized clinical studies (episode 1), the nurse/patient experience (episode 2), and specifics on Travere's Harmony and Compose studies (episode 3). We are grateful to have been given the opportunity to work with Science 37 and Travere Therapeutics on getting this information out to the homocystinuria community. In episode 1, we hear from Dr. Debra Weinstein, Science 37's CMO and Jeff Richardson, Science 37's VP of Recruiting and Operations. They give an overview of decentralized clinical trials and discuss why this approach to clinical research may be especially relevant to the homocystinuria community. During Lindsey's Pro Snacksss, we talk about Lindsey's homemade applesauce. HARMONY/COMPOSE Study Sign-Up Check Out Science 37! Check Out Travere Therapeutics Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

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Decentralized Clinical Trials (1/3)

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