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EPISODE · Apr 30, 2021 · 9 MIN

«Der schwärzeste Tag»

from Radio Grischa Talk · host Chris Strauch

Es war der schwärzeste Tag in ihrem Leben, als Ursina Schmid und Mario Rosario Raciti aus Zizers über dieDiagnose ihrer Tochter informiert wurden. Die mittlerweile siebenjährige Julia leidet an dem seltenenSanfilippo-Syndrom - einer Form von Kinderdemenz. Julia vergisst allmählich all dieDinge, die sie in ihrem Leben gelernt hat - dazu gehören auch Sprache und Motorik. Doch die Eltern geben die Hoffnung nicht auf. Im Kampf gegen die Krankheit haben sie den Verein «Hope for Julia» gegründet.

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