Designated a Liability: Cruising With Cystic Fibrosis — Ella Balasa (Audio)

Imagine going on a cruise to the sunny Caribbean, only to be told by the doctor on board that you were barred from the ship and finishing your vacation. That is exactly what happened to Ella Balasa, an adult with CF, who sought assistance from a cruise doctor whose lack of knowledge of CF led to very unfortunate outcomes. In this podcast, Ella details her story of seeking routine care while feeling unwell and how she utilized self-advocacy in the face of adversity to make sure her needs were met before and after her travels.  Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/56NJC95, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email. Funding for this CF Community Voices podcast has been provided to date by Viatris and Vertex Pharmaceuticals.