Dhanya Ravi : Rare but Real - Living with a rare disease | Genomics Gupshup Episode - 30

👉A rare genetic disorder called Osteogenesis imperfecta (OI) from birth gave Dhanya Ravi (Disability Evangelist)more than 200 broken bones, but it didnt cursh her spirit or shatter her dreams. In this Rare Disease Day special episode(Episode# 30), listen to Dhanya Ravi’s inspiring life story and how she became an advocate for those living with rare diseases. #Mapmygenome is a pioneering #genomics company helping consumers and patients lead healthier lives using genomic tests and counseling. 🌐Click on https://mapmygenome.in/ for more information or to place an order online. We have made testing easy by sending the tests kits to your home, since we want #HarGharDNA. ⏩Preventive Genomic tests include the popular #Genomepatri for wellness, #MedicaMap for discovering which medicines work for you, #GenomepatriHeritage for discovering your ethnic roots, #MyFitgene for discovering your true potential and #BeautyMap to understand which beauty products work best for you. 🧬Clinical genomic tests include #wholeexomesequencing, #DNAOnconex , #Wholegenomesequencing, #NIPT, #BabyMap and more 📞Reach out to us : Email - [email protected], Toll-free: 1800 102 4595, WhatsApp( 24 hours) : +91 86883 10052 Find us on - Instagram - https://www.instagram.com/mapmygenome LinkedIn- https://www.linkedin.com/company/mapm...\ Facebook - https://www.facebook.com/Mapmygenome.in Twitter- https://twitter.com/mapmygenome ▬ Contents of this video ▬▬▬▬▬▬▬▬▬▬ 00:00 - Intro 02:01 - Dhanya Ravi's journey. 04:20 - How the disease was diagnosed by the doctors? 06:29 - How communities have contributed. 09:30 - Was homeschooling simple? 13:47 - Should the physical infrastructure be changed? 20:24 - How did you discover the positive aspects of life? 23:35 - Some of Dhanya Ravi's best moments 25:10 - Information on Rare Disease Day 28:19 - Do you believe that awareness and acceptance are important? 33:36 - Was it difficult to make friends, and how can we make a difference? 39:09 - Why genetic testing is important? 42:44 - Are people afraid and unaware of Rare Disease Conditions? 49:10 - Guidance for those with Rare Disease Conditions. 50:48 - How did you start out as a writer? 52:25 - A prose by Dhanya Ravi 54:35 - Rapid Fire Popular Products Genomepatri GenomepatriTM, Mapmygenome’s DNA-based health, and wellness solution help you discover your true selfie. This provides 100+ easy-to-read reports about your genetic makeup, susceptibility to health-related conditions, and response to medications. Buy now: https://mapmygenome.in/genomepatri/ Genomepatri Heritage GenomepatriTM Heritage, Mapmygenome’s DNA-based ancestry analysis helps you discover the origins of You. It lets you explore the missing links in your ancestral roots and identify your inheritances. It covers over 75+ global regions and provides exclusive insights into your ethnic composition and ancestral migration patterns. Buy Now: https://mapmygenome.in/genomepatri-he... MedicaMap Medicamap is Mapmygenome’s pharmacogenomics solution for personalizing your medication. It helps your clinician make informed decisions on medicine dosage and choice of medications. Buy Now: https://mapmygenome.in/medicamap/ BeautyMap BeautyMap is Mapmygenome’s DNA-based solution to understand your skin & hair better. This solution provides easy-to-read ™ reports with insights on 40+ conditions of your skin, like skin ageing, hydration, elasticity, acne, and sun photoactivity, along with a free genetic counselling session. Buy Now: https://mapmygenome.in/beautymap/ Cardiomap Cardiomap is a revolutionary new development that can give you a genetics-based cardiac risk profile, for the common Cardiovascular diseases, traits that are known to have associations with the CVD’s. Buy Now: https://mapmygenome.in/cardiomap/ . . . #DhanyaRavi #RareDiseaseDay #ShowYourRare #DhanyaRavi #Inspiration #OsteogenesisImperfecta #OI #brittlebone #disabilityawareness #wheelchairaccessible #inclusion #RareDiseases #CareAboutRare #TogetherForRare #RareAware #RareWarrior #LeaveNoOneBehind #health #lifestyle #disease #geneticcounseling #preventivegenomics #preventivehealthcare #geneticdisease #genes #health #genomics #mapmygenome #knowyourself #genome #genometest #ambani #genome #genomicpioneer #genomicpioneers #genomicspioneer