Digital Stories in Community-Based Research with Carolyn Brandly

A single well-told story can do what a stack of reports cannot: make someone feel the reality of living in a body, a system, or a diagnosis they’ve never had. We sit down with Carolyn, a newly trained Common Language Digital Storytelling facilitator and PhD student, to unpack how digital storytelling becomes a practical tool for health research, quality improvement, and stigma-breaking conversations.Episode Key Messagesrecreation therapy roots and building community programs for older adultsresearch and quality improvement as tools for systems change in long-term carediscovering Common Language through MAID digital stories and stigma reductionchoosing a more personal story and learning facilitation through vulnerabilityliving with disability, wait times in Canada, and rebuilding identity after surgeryKilimanjaro as a turning point for confidence, aging, and capacityadapting digital storytelling for people living with dementia in a PhD protocolco-research, simplified materials, slower pacing, and practical accessibility tweaksmaking a first volunteer story with her mom and deepening connection through memoryrecording voiceover many times and small changes that amplify a storyteller’s voiceinformed consent, sharing implications, and the ethics of public storytellingchallenging ethics board assumptions and shifting to assumed capacityrights-based approaches to dementia in public spaces and collaboration invitationsOther Links MentionedRead this episode's blog postWatch Carolyn's StoryWatch Marg's StoryLearn more about Fostering Inclusion for People with DementiaLearn more about Carolyn's work with Dementia Connections and PhD researchOther Episodes MentionedEpisode 37 Disrupting Death: Stories of MAiD with Kathy Cortes-Miller and Keri-Lyn DurantEpisode 52 The Storyteller’s Yellow Pages with Lisa JoworskiEpisode 57 What Changes When We Treat Stories Like Data with Dr. Katharine SmartAbout Our GuestCarolyn Brandly has worked with and for older adults and people with dementia for 20+ years in care and community settings – designing, implementing, and evaluating health promotion programs, and facilitating community development, knowledge translation and quality improvement initiatives and research. Carolyn has achieved an MA in health leadership, as well as completing graduate-level education in dementia studies, gerontology, and entrepreneurship, and is currently undertaking doctoral studies through the University of Victoria’s Social Dimensions of Health Program. Her aim is to contribute to global efforts shaping inclusive health and social systems that uphold the human rights, autonomy and dignity of people living with dementia. Hosted on Acast. See acast.com/privacy for more information.