Discussing Diagnosis and Access With the EveryLife Foundation for Rare Diseases

from Wait, How Do You Spell That? A Rare Disease Podcast · host waithowdoyouspellthatraredisease

Ilana and Sunni are joined by Annie Kennedy and Lindsey Cundiff from the EveryLife Foundation for Rare Diseases. EveryLife is a nonprofit dedicated to advancing treatment and diagnostic opportunities for rare disease patients through science-driven public policy. In this episode, they discuss the steep road to diagnosis that many rare disease patients face, ways to improve access to treatment and also the economic and social burden of living with a rare disease. Learn more about their mission at EveryLifeFoundation.org.

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This episode is 34 minutes long.

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This episode was published on July 17, 2020.

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