Doença de Huntington: conscientizar transforma o cuidado ...

What this episode covers

A tecnologia e a informação têm o poder de transformar a realidade de quem convive com doenças raras, ampliando diagnósticos, promovendo conscientização e impulsionando políticas públicas mais inclusivas.No dia 27 de setembro, celebrado como o Dia Nacional da Doença de Huntington, essa reflexão ganha ainda mais relevância. A condição, que é hereditária e neurodegenerativa, impõe desafios que vão além dos sintomas: estigma, diagnóstico tardio, desigualdade no acesso ao cuidado e sobrecarga familiar e emocional.Neste episódio do podcast Moving Matters, em parceria com a Teva, Camila Pepe conversa com Gladys Miranda, presidente da Associação Brasil Huntington, e Antoine Daher, presidente da Casa Hunter.Eles discutem como a informação e a mobilização social podem transformar o cuidado em doenças raras e destacam a importância de datas celebrativas na construção de um futuro mais inclusivo.

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Frequently Asked Questions

How long is this episode of MIT Technology Review Brasil?

This episode is 41 minutes long.

When was this MIT Technology Review Brasil episode published?

This episode was published on September 26, 2025.

What is this episode about?

A tecnologia e a informação têm o poder de transformar a realidade de quem convive com doenças raras, ampliando diagnósticos, promovendo conscientização e impulsionando políticas públicas mais inclusivas.No dia 27 de setembro, celebrado como o Dia...

Can I download this MIT Technology Review Brasil episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.