Don't Walk Away: Finding Joy as an Alzheimer's Care Partner

Host Dave Roberts interviews Marilyn Raichle, author of “Don’t Walk Away: A Care Partner’s Journey,” who grew up in a family that viewed Alzheimer’s as worse than death and was taught to “walk away.” After earning an MPA from Harvard, she became caregiver for parents developing dementia, initially reluctant but later finding joy and meaning by focusing on her mother Jean’s enduring personhood and living in the moment. Jean developed an unexpected passion for painting in memory care, inspiring Raichle to found The Art of Alzheimer’s in 2010 to showcase creativity in dementia and reduce fear through art. Raichle discusses shifting from “caregiver” to “care partner,” the importance of community, and moments of humor and connection. She now leads Maude’s Awards for Innovation in Alzheimer’s Care, distributing $100,000 annually and sharing a free handbook of innovations.Marilyn’s Bio and Contact InformationMarilyn Raichle, author of Don’t Walk Away, grew up in the shadow of Alzheimer’s. Nearly everyone in her father’s family and many in her mother’s developed the disease. Her mother Jean told her, “When we get Alzheimer’s, walk away. There is nothing you can do, so live your life and don’t sacrifice it for us.” Instead, Raichle became transformed, embracing the value and joy of people who are living with, not suffering from, dementia.Marilyn Raichle began her career in the performing arts. She founded the Seattle International Children’s Festival, introducing children to world culture through the performing arts. In 2007, she received a Master of Public Administration from Harvard University’s Kennedy School of Government. Upon returning to Seattle, her career was upended when she became the family caregiver for her parents, both of whom were developing dementia. It was a rocky journey, at first reluctant and ultimately joyous. In 2010, inspired by her mother’s newfound artistic ability, she founded The Art of Alzheimer’s, celebrating the creativity of people living with dementia and the power of the creative arts to enrich and empower their lives. She is now the Executive Director of Maude’s Awards for Innovation in Alzheimer’s Care. https://www.linkedin.com/in/marilynraichle/ www.facebook.com/marilyn.raichleinstagram.com/raichlem/ Dontwalkaway.net/