Doug Lindsay, Patient Advocate

Doug Lindsay has spent the last two decades investigating and tackling rare, complicated medical conditions – first in himself and his family and now through his Personal Medical Consultant service. An innovator, Doug partners with clients and experts to make new things happen. He works to get clients who are stuck in the medical system unstuck. To aid him in his work, he strives to understand healthcare from all levels of organization, from the individual to health systems, public health, and global health. Doug’s dogged, indefatigable ability to chase down answers to an individual’s complex problems makes him a special asset as a teammate and Personal Medical Consultant. In addition to his Personal Medical Consultant service, Doug Lindsay • Co-chairs PCORI’s Congressionally-mandated Rare Disease Advisory Panel (RDAP) • Co-chairs Washington University School of Medicine’s Community Advisory Board for the Institute for Clinical and Translational Sciences and the Institute for Public Health (ICTS & IPH). • Is Community Advisory Board member for the National Institutes of Health’s ACTIV-1 IM trial. (ACTIV is the US government’s public/private/nonprofit collaboration for Accelerating COVID-19 Therapeutics and Vaccines research.) • Is member of the National Institutes of Health’s ten-person ACTIV COVID Biospecimen Prioritization Committee. (NIH) • Is member of Academy Health’s Global Health Interest Group. • TEDx talk Operation: Adrenal Gland can be found at TED.com • Was speaker in the panel kicking off Academy Health’s Datapalooza, 2019 • Has twice been an ePatient Scholar at Stanford Medicine X (2017, 2019) • Appeared on The Dr. OZ Show in fall 2019 as example of The Power of 1 (to make a difference). • Was the first patient invited to give a fireside chat for the Health Management Academy, which hosts C-Suite education conferences for the nation’s 100 biggest hospital systems, 2017. • Co-chaired aviation humanitarian nonprofit Wings of Hope’s “Taste of Hope” fundraiser • Has been keynote speaker for national organizations like AHIMA, for healthcare conferences like the Society for Participatory Medicine, and at internal corporate events for firms like Pfizer. • Graduated with honors from Rockhurst University’s Honors College with a BS in biology in 2016. • CNN online feature “This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself” on his story was the #3 article globally across all media platforms for all of 2019 for time readers spent reading it.