Dr Victoria Shepherd - Advance planning for research participation

Dr Victoria Shepherd narrates her blog written for Dementia Researcher. Do you have experience of struggling to recruit people to your research study? Both Alzheimer’s Research UK and Alzheimers’ Society have highlighted the shockingly low participation in dementia research compared to other major health conditions. Recent announcements of a ‘national mission’ to tackle dementia and funding to strengthen capacity and capability in dementia research are, of course, very welcome. However, the barriers to recruiting sufficient numbers of people living with dementia will also need to be addressed. Could there be other ways to look at this challenge? Vicky discusses in this blog. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/guest-blog-advance-planning-for-research-participation/ -- Dr Victoria Shepherd is a Senior Research Fellow at Cardiff University where she leads a programme of research to improve inclusivity of under-served groups in trials, with a particular focus on the ethical and methodological challenges around involving adults who lack capacity to consent. She leads a number of trials methodology research projects, including the development of the NIHR INCLUDE Impaired Capacity to Consent Framework which helps researchers to design more inclusive trials. Victoria is a registered nurse and is also involved in the design and conduct of a range of clinical trials and national and international studies in care homes. Follow Vicky on Twitter: @VickyLShepherd -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.