Dying to Live: The Unfiltered Reality of Sickle Cell with AJ Dattani | The Edge on Affinity Xtra episode artwork

EPISODE · May 9, 2026 · 2H 24M

Dying to Live: The Unfiltered Reality of Sickle Cell with AJ Dattani | The Edge on Affinity Xtra

from Affinity Xtra On Demand · host AffinityXtra

Dying to Live: The Unfiltered Reality of Sickle Cell with AJ Dattani | The Edge on Affinity Xtra   "I'm no longer living to die. I'm dying to live."   In this powerful episode of The Edge on Affinity Xtra, host Roger Moore sits down with AJ Dattani, Chairman of OSCAR Birmingham, for a raw conversation about life with a severe sickle cell disorder. AJ doesn't hold back, sharing his harrowing journey from spending most of his childhood in the hospital, to surviving acute heart failure, to finding a renewed faith and purpose.   We also chop it up about the reality of sickle cell and thalassaemia across different global communities. AJ breaks down the life-saving impact of blood transfusions and blood exchanges, highlighting exactly why we urgently need more donors—especially those with the RO subtype from the Black, African, and South Asian communities. Plus, we look at the incredible 50+ year legacy of OSCAR Birmingham and how they continue to support thousands of patients and their carers today.   Stop waiting for death, and start living! Watch, share, and find out how you can support the cause.   🩸 Support & Contact OSCAR Birmingham: Organisation for Sickle Cell Anaemia Relief and Thalassaemia support 📍 22 Regent Place, Birmingham, B1 3NJ 📞 0121 212 9209 🌐 oscarbirmingham.org.uk ✉️ [email protected]   #SickleCell #SickleCellAwareness #Thalassaemia #OSCARBirmingham #TheEdge #RogerMoore #AffinityXtra #BloodDonation #ROSubtype #GiveBlood #BirminghamUK #BlackHealth #CommunitySupport   https://youtu.be/7PFm49UWg88   📸 Instagram Post   "I'm no longer living to die. I'm dying to live." 🩸   In the latest episode of The Edge, Roger Moore chops it up with AJ, Chairman of OSCAR Birmingham, about the raw, unfiltered reality of living with a Sickle Cell disorder.   AJ shares his powerful journey through severe health crises, the life-saving impact of blood transfusions, and why our community urgently needs to step up and donate blood—especially if you have the RO subtype!. It’s not just a medical condition; it’s a daily battle that impacts the whole family, and OSCAR Birmingham has been on the front lines supporting our people for over 50 years.   Hit the link in our bio to watch the full interview on Affinity Xtra. Let's stop struggling in silence and start supporting each other.   Get involved and support OSCAR Birmingham: Organisation for Sickle Cell Anaemia Relief and Thalassaemia support 📍 22 Regent Place, Birmingham, B1 3NJ 📞 0121 212 9209 🌐 oscarbirmingham.org.uk ✉️ [email protected]   #SickleCellWarrior #Thalassaemia #GiveBlood #OSCARBirmingham #AffinityXtra #TheEdge #Birmingham #SickleCellAwareness #ROSubtype #CommunityFirst   🐦 X (Twitter) Post   "I went from waiting for death, to dying to live." 🎙️ On The Edge, Roger Moore sits down with AJ, Chairman of OSCAR Birmingham, to discuss the unfiltered reality of Sickle Cell & Thalassaemia.   We urgently need more RO subtype blood donors from the community to save lives! 🩸 Watch the full interview on Affinity Xtra.   #SickleCell #GiveBlood #OSCARBirmingham #AffinityXtra #TheEdge   https://youtu.be/7PFm49UWg88  

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