Dyskeratosis Congenita with Damien from Arizona improved sound from live

Send us Fan MailThis is an audio playback from the live version of my podcast earrlier today with Damien.  If you were listening to the live version, I rerecorded my part to make it clearer.  I am hoping that upgrading my internet plan will help with the video version.    This episode is on Dyskeratosis Congenita (bone marrow failure) by means of Short Telemere Syndrome (Diysfunctional Chromosomes/DNA).  Damien is an retired US Air Force Vet from Arizona.  He was a flight engineer for the Air Force,  He followed his dream to fly until he was involved in a car accident and the health issues he had ignored caught up with him.  He has had 2 bone marrow transplants.  We also talk briefly about the dog that helped him throught the trauma.  Please subscribe to my YouTube channel Rare Chef and this podcast wherever you are listening.  Shorts for this live may be delayed because of a trip to Atlanta, but they should be up by Friday. Chapter Markers0:00:00 Intro0:03:39 Early symptoms0:07:21 Air Force picture0:10:26 Balancing Demands of Military Life0:12:06 Challenges of an accurate diagnosis0:16:07 Managing  life as a flight engineer0:18:20 coping on daily life0:23:25 support from community0:25:42 service dog0:33:10 Transfusion before 2nd transplant0:37:23 How Damien Managed his health after the loss of his father0:41:05 support system0:43:26 Day to Day life0:48:34 military survival school0:52:57 Volunteer work0:55:49 treatment process0:59:10 clinical trials1:01:00 advice to others1:07:30 what could Damien have done differently1:09:13 Biggest takeaway from Damien's journey1:11:08 Damien's message to future donors & how the gift has changed his life1:15:52 Benefit of sharing your story1:19:00 conclusionSupport the show