Η ζωή με νευρομυϊκές παθήσεις episode artwork

EPISODE · Sep 8, 2025 · 29 MIN

Η ζωή με νευρομυϊκές παθήσεις

from Kind Talks Με Την Εριέττα Κούρκουλου Λάτση · host Streamee

Η Εριέττα Κούρκουλου Λάτση μιλάει με την Αντιγόνη Καρρά, διευθύντρια της MDA Ελλάς, για τον οργανισμό που εδώ και χρόνια στέκεται στο πλευρό των ανθρώπων με νευρομυϊκές παθήσεις. Συζητούν για το πολυδιάστατο έργο του σωματείου, από την καθημερινή στήριξη ασθενών και οικογενειών, μέχρι την προώθηση της έρευνας, την πρόσβαση σε θεραπείες και τη διεκδίκηση ίσων δικαιωμάτων. Μια συζήτηση που παρουσιάζει τις προκλήσεις που αντιμετωπίζουν αλλά και τις δυνατότητες που έχουν αυτοί οι ασθενείς, και μας δείχνει γιατί η ένταξη και η αποδοχή δεν είναι πολυτέλεια αλλά ανάγκη.

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Η ζωή με νευρομυϊκές παθήσεις

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