Elodie's Battle with Rare SMA | Nottingham News

A newborn’s joy turned to heartbreak in minutes when Elodie Rose, born July 10th, stopped breathing and was rushed to intensive care. Initially diagnosed with SMA type one, further tests revealed the far rarer and more devastating SMA type zero — a condition that may limit her to just months of life and prevent her from sitting up. Her parents, Danielle and Brendan, now face not only heartbreaking medical uncertainty but also unstable housing, making bringing her home even harder. Though medication keeps her comfortable, there’s no cure — gene therapy might help if her condition stabilizes enough. They’re sharing her story not for sympathy, but to raise awareness about SMA, hoping to connect with other families and stress the urgency of early diagnosis. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/03c2f4d802ea591c