Emergency Protocol.net - JIMD Podcasts

What this episode covers

Dr Terry Derks is joined by co-author, collaborator and IMD parent, Sebastiaan te Boekhorst to discuss the emergencyprotocol.net website, an initiative to empower families and standardise care for children with FAOD and GSDs. Alongside Terry and Sebastiaan are Enrique Landelino “Lande” Contreras and Marta D’Agosto, parents of Nina, a little glycogen storage disease warrior, sharing their thoughts on what this work means to them. A generic emergency protocol for patients with inborn errors of metabolism causing fasting intolerance: A retrospective, single-center study and the generation of www.emergencyprotocol.net Alessandro Rossi et al. https://doi.org/10.1002/jimd.12386 View from inside: Nina, Glycogen storage disease warrior Written by Nina's Parents: Enrique Landelino “Lande” Contreras and Marta D'Agosto https://doi.org/10.1002/jimd.12246

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Frequently Asked Questions

How long is this episode of JIMD Podcasts?

This episode is 21 minutes long.

When was this JIMD Podcasts episode published?

This episode was published on May 28, 2021.

What is this episode about?

Dr Terry Derks is joined by co-author, collaborator and IMD parent, Sebastiaan te Boekhorst to discuss the emergencyprotocol.net website, an initiative to empower families and standardise care for children with FAOD and GSDs. Alongside Terry and...

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