Empowering Rare Disease Families: A Conversation with Krystle Schofield

In the world of healthcare, storytelling has become an integral tool for communication, advocacy, and education. Join our conversation with Krystle Schofield, a dedicated Common Language Digital Storytelling Facilitator with a profound personal story of her own, as she unveils the transformative journey from documentary family photography to digital storytelling. Her compelling narrative, filled with the catharsis of the storytelling process and enriched by diverse perspectives, invites us into a world of creativity and storytelling that begins with an image or a free-written core of a story.Continuing our insightful discussion, Krystle shares her experience in digital storytelling workshops, bringing to light the varying levels of training, and the importance of co-creating ethical storytelling frameworks. Drawing on touching narratives, like Amelie's story of growing up as a competitive gymnast with congenital heart disease and Sue 's heartfelt letter to her grandson, we delve into the profound impact of these stories on families and communities. The conversation takes a hopeful turn as we explore the potential of digital storytelling as a unifying tool for the rare disease community. Listen in and discover the power these stories possess, and the transformative change they can bring.About Our GuestKrystle Schofield is a digital storytelling facilitator and photographer based in Victoria, British Columbia. Through her own experience as a rare disease mom, she knows that digital storytelling can be a positive and connecting experience for both the storytellers and audience. She knows that sharing the reason we show up in ourselves and our work will invite others to do the same. Krystle works with individuals and values-based organizations to create authentic imagery and tell impactful stories.Website: www.krystleschofield.com Instagram: @krystleschofieldphotoLinkedIn: @krystleschofieldCLICK HERE to watch a Digital Story made by Krystle.Shift - A digital story by KrystleFrom the Heart - A digital story by AmelieRead Sue Robins' blog The Making of Big Love about creating a digital story with Krystle. Hosted on Acast. See acast.com/privacy for more information.