ENTREVISTA CAROLINA PERAL AER-ELX

En Torrevieja Radio hemos charlado con Carolina Peral, presidenta de AER-ELX, la Asociación de Enfermedades Raras de Elche. En esta entrevista hemos abordado la realidad que viven las personas afectadas por enfermedades poco frecuentes, así como sus familias, quienes a menudo se enfrentan a un profundo desconocimiento, falta de recursos y dificultades en el acceso a diagnósticos y tratamientos. Carolina nos ha contado el importante trabajo que realiza la asociación: ofreciendo apoyo emocional, información médica actualizada, orientación social y creando una red de acompañamiento para quienes atraviesan situaciones tan complejas. Además, ha subrayado la importancia de visibilizar estas enfermedades. Una conversación necesaria y muy humana que pone el foco en quienes más apoyo necesitan.

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