Ep 038: Unifying the Chromosome 8p Community While Accelerating Treatments for Tomorrow

Bina Shah– The Truman Charities Podcast: A Community of Caring with Jamie Truman Episode 38 Bina Shah.In 2018, Bina founded Project 8p Foundation to accelerate research with the goal of treatment for chromosome 8p heroes like her daughter Karina. Since then, she has fully committed herself to the advancement of clinical and research understanding of rare disorders, in particular neurodevelopmental chromosomal disorders such as the 8p rearrangements. Shifting perspectives from disease specific efforts to innovative approaches that are gene-agnostic and cross disorder is a long term scalable vision of hers. As a result, she is the founding partner of the Commission on Novel Technologies for Neurodevelopmental Copy Number Variants (CNVs).Her family resides in New York City where Bina earned her B.S. in Finance & Marketing from NYU Stern Business School as well as her M.B.A. from Columbia University. She has over 15 years of experience in finance in the areas of mergers and acquisitions, private and public equity investing, real estate development, and property management. Bina leverages her business and entrepreneurial background and network to build bridges to improve efficiencies in a Collaborative Impact model for Team Science.Listen to this uplifting Truman Charities episode with Bina Shah about her business and entrepreneurial background and network to build bridges to improve efficiencies in a Collaborative Impact model for Team Science.Here is what to expect on this week’s show:- Bina's personal journey and why there is such a need for education on this rare disease.-Project 8P events where families from all over the world can come together and finally not feel alone-Where Bina sees Project 8p in ten years and how we can help these childrenConnect with Bina:Website- https://project8p.orgLearn more about your ad choices. Visit megaphone.fm/adchoicesConnect with Jamie at Truman Charities:FacebookInstagramLinkedInWebsiteYouTubeEmail: [email protected] episode was post produced by Podcast Boutique https://podcastboutique.com/