Ep 106. Being Rare and Black: A Rare Disease Day Exclusive

from Being Rare Podcast · host Sarita Edwards

In this episode of the Being Rare Podcast, Sarita sits down with James Griffin and Genesis Jones, patient advocates and authors. We're talking about navigating life with sickle cell, healthcare bias, stigma, and more!The books mentioned in this episode can be found on Amazon. Direct links are below.Breaking Silence: Living with Sickle Cell Anemia by James Griffin III https://a.co/d/3znpc3sRebirth: A Sickle Cell Warrior's Crossover (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/3lVQL7ZResilient: Reflections of a Sickle Cell Journey (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/73XsFla

Episode metadata supplied by the publisher feed · Published Mar 1, 2025

Embed this episode

Attribution link and audio player

NOW PLAYING

Ep 106. Being Rare and Black: A Rare Disease Day Exclusive

0:00 55:49

1×

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

Share this episode

Similar Episodes

No similar episodes found.

Similar Podcasts

No similar podcasts found.

Frequently Asked Questions

How long is this episode of Being Rare Podcast?

This episode is 55 minutes long.

When was this Being Rare Podcast episode published?

This episode was published on March 1, 2025.

Can I download this Being Rare Podcast episode?

Yes. Use the download control on the episode player to save the publisher-provided media file.

URL copied to clipboard!