Ep 11: Tricky Feelings Around Disability Pride and Where Caregivers Fit In episode artwork

EPISODE · Jul 31, 2024 · 46 MIN

Ep 11: Tricky Feelings Around Disability Pride and Where Caregivers Fit In

from Caffeinated Caregivers · host Erica Stearns & Alyssa Nutile

It's the last day of Disability Pride Month, which is appropriate considering that we at Caffeinated Caregivers have been avoiding talking about this topic all month. To be honest, Disability Pride has got us up in our feels a little bit, because as disabled adults who are also caregivers to disabled kids, it brings up a lot of conflicting and confusing emotions as we try to figure out our place in all this.And as far as we can tell, we're not alone in feeling a little confused about how we're supposed to engage with Disability Pride. So today, we're digging into some history behind Disability Pride, what we're actually celebrating during Disability Pride (spoiler: it's not actually the pain or suffering that we or our kids endure), why it's valuable and important to celebrate (but why it's not more important than protecting your own energy), AND how caregivers fit into all of this.If you've been confused about what Disability Pride means for caregivers, this episode is for you. Let's get into it.In this episode:[00:00:00] Intro[00:00:35] Erica and Alyssa discuss the merits present (or not) in grapefruit[00:04:16] Why Erica and Alyssa have been avoiding this conversation topic[00:10:57]Alyssa's big and complicated feelings around Disability Pride (and why being a caregiver has changed how she would otherwise interact with Disability Pride)[00:16:19] A quick history of Disability Pride Month[00:22:53] What allyship looks like and how caregivers fit into Disability Pride[00:30:10] Why some caregivers don't feel like they relate to Disability Pride[00:30:38] The life and death ramifications of untreated mental health struggles (and it's not just about ideation around unaliving yourself)[00:35:37] Ways that caregivers can join in the celebration and why they can let go of guilt if they don't[00:41:18] What we're actually celebrating (and what we aren't) during Disability PrideFor the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/ep11Follow us on Instagram for research, validation, and a lot of memes @caffeinated_caregivers.Subscribe to our show in your favorite podcast app so you don't miss a single episode! Thanks friends! Talk soon!

It's the last day of Disability Pride Month, which is appropriate considering that we at Caffeinated Caregivers have been avoiding talking about this topic all month. To be honest, Disability Pride has got us up in our feels a little bit, because as disabled adults who are also caregivers to disabled kids, it brings up a lot of conflicting and confusing emotions as we try to figure out our place in all this. And as far as we can tell, we're not alone in feeling a little confused about how we'...

NOW PLAYING

Ep 11: Tricky Feelings Around Disability Pride and Where Caregivers Fit In

0:00 46:38

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

The Invisible Wave Podcast Invisible Wave An estimated 1 in 4 young adults in the U.S. are living with a chronic medical condition, many invisible to the naked eye, and posing unique challenges in education, healthcare, the workplace, mental health, and the family.The Invisible Wave Podcast illuminates these shared challenges through highly relatable personal stories from individuals, caregivers, and innovators, and highlights effective grassroots solutions to improve quality of life for this vast, underserved community.*About the Host:*On the first day of her medical fellowship, Dr. Santi Bhagat’s 8-year-old daughter was rushed to the emergency room where they induced a medical coma to stop her first seizure. In that moment Dr. Bhagat crossed the threshold from being a physician to a frightened mother desperate to protect and save her child, and was moved to create Physician-Parent Caregivers (PPC), a non-profit to protect young people with chronic health conditions and their families. Santi has since founded the Anthem Aw Kiddywink Crew Podcast Kiddywink Crew Kiddywink Crew is a weekly, kid-centric podcast that uses original storytelling to teach social-emotional skills, problem-solving, and empathy to children ages 3–7. Created by educators and co-founders Julianna Bria and Lindsay Farley, each episode features diverse, inclusive characters like Ozzie the Octopus and Sammy the Seahorse, who navigate real-world challenges with creativity and heart. Through imaginative tales and interactive segments like "guess using clues," "potential pause points," and “Would You Rather” questions, Kiddywink Crew sparks curiosity and encourages young listeners to think critically and compassionately. Praised by parents for its engaging, screen-free content, the podcast is a favorite for car rides, bedtime, and family time. With over 80 episodes across three seasons, Kiddywink Crew offers a joyful and meaningful listening experience for kids and caregivers alike. Dementia Empowered: Confident Caregiving with Legal, Financial, and Daily Support Patrick Cawley Does caring for an aging parent with dementia leave you feeling overwhelmed?Managing bills, using a power of attorney, and understanding the health care system is hard enough, but you may also be baffled by your family member's behaviors. Dementia Empowered is a podcast helping family caregivers to navigate dementia care, overcome legal and financial challenges, and confidently support their loved ones. Your host, elder law attorney and dementia care coach Patrick Cawley, has worked with people in your situation for years. After preparing legal documents or making long-term care strategies, Patrick found that dementia caregivers needed much more guidance. He started this show to give clarity on legal tools, financial strategies, and care skills that will reduce stress and enhance quality of life. Tune in twice a week for the complete package of dementia care. You can do this! Slightly Caffeinated Chris Gmyr, TJ Miller Join Chris Gmyr and TJ Miller as they dive into the world of PHP, Laravel, and all things programming, while also sharing insights on family life and other musings.

Frequently Asked Questions

How long is this episode of Caffeinated Caregivers?

This episode is 46 minutes long.

When was this Caffeinated Caregivers episode published?

This episode was published on July 31, 2024.

What is this episode about?

It's the last day of Disability Pride Month, which is appropriate considering that we at Caffeinated Caregivers have been avoiding talking about this topic all month. To be honest, Disability Pride has got us up in our feels a little bit, because as...

Can I download this Caffeinated Caregivers episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.
URL copied to clipboard!