The Invisible Wave Podcast
by Invisible Wave
An estimated 1 in 4 young adults in the U.S. are living with a chronic medical condition, many invisible to the naked eye, and posing unique challenges in education, healthcare, the workplace, mental health, and the family.The Invisible Wave Podcast illuminates these shared challenges through highly relatable personal stories from individuals, caregivers, and innovators, and highlights effective grassroots solutions to improve quality of life for this vast, underserved community.*About the Host:*On the first day of her medical fellowship, Dr. Santi Bhagat’s 8-year-old daughter was rushed to the emergency room where they induced a medical coma to stop her first seizure. In that moment Dr. Bhagat crossed the threshold from being a physician to a frightened mother desperate to protect and save her child, and was moved to create Physician-Parent Caregivers (PPC), a non-profit to protect young people with chronic health conditions and their families. Santi has since founded the Anthem Aw
Episodes
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Episode 11 | A New Opening?
For all there is to say about the incoming presidential administration, and there's plenty, one thing that surprised us was to see chronic illness mentioned front and center in all the Health picks. Santi enlists Dr. Kavita Patel, Obama admin veteran, DC insider and MSNBC contributor, to make…
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Episode 10 | Med Men in the Family
Father and son doctors Hank and Reid Chambers take us through the experience of being father and sibling to a young person with cerebral palsy, and how that lived experience, and their perspective as men in their families, has informed their relationships with each other and with the families of...
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Episode 9 | The Dropout Epidemic
Building on our higher ed theme, the Invisible Wave Ambassadors join Santi to illuminate the unique unseen challenges they have personally faced in college and grad school, causing them to struggle, fall behind, and even drop out. And they share simple, attainable ideas for the kinds of support...
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Episode 8 | Family Mental Health Special
Parents of young adults with chronic health conditions are presented with a unique dilemma - how to let go of their protective instincts and encourage autonomy and independence in their children as they move into adulthood, when faced with serious, even life-threatening health care realities.…
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Episode 7 | The Parent Experience
Guests Wendy and Miller Steel take us through the experience of being parents to a young adult with a chronic condition, with themes that will be familiar to listeners of the Invisible Wave Podcast - years of misdiagnosis, gaslighting, suffering and sacrifice - but also with some bright notes on...
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Episode 6 | Whiplash
One year into his ROTC program, Guest Nick Ruffini was stamped undeployable due to a Crohn's disease diagnosis. Despite a specialist's assurances that Nick would be able to complete his training and serve with the right treatment, he was told his dream of a life of service was over, and his...
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Episode 5 | Higher Ed Pt. 2 - Legalize It
MD State Senator Brian Feldman and Delegate Joseline Peña-Melnyk give us their thoughts on Margot Schinella’s groundbreaking model at Vassar and how it might serve as the basis for legislation at the Maryland State level. They take us behind the legislative curtain and drive home how activism is...
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Episode 4 | Higher Ed Pt. 1 - Model This
In part 1 of our 2-part series on the crucial topic of support for this population on college campuses, we are pleased to welcome Margot Schinella, head of a groundbreaking support system at Vassar College that could serve as a model for campuses nationwide. To get involved and donate, visit:...
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Episode 3 | You Can't Do That
SELF-Diagnosed with MS at 13, Trisha was told she couldn't row crew anymore, was likely going to be in a wheelchair, and was going to relegated to the sidelines of her life. She now holds several jobs in public health analysis, DID row crew through high school, was on the power weight lifting…
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Episode 2 | Real Strength
James Richardson grew up with cystic fibrosis, a serious condition affecting the lungs, and was not expected to live past 19. Like many young men, sharing something that might make him seen as other, or as somehow less-than or weak, was difficult. So he navigated all the stress and daily...
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Episode 1 | The Pediatrics Cliff
When kids with chronic conditions transition from pediatrics to adult medicine, they fall off something of a cliff of support. Adult medicine is simply not set up to address the needs of this population, and these young people and their families are left to manage the complexity, stress and…
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The Invisible Wave Podcast
Host Dr. Santi Bhagat describes how her daughter Natasha's diagnosis with epilepsy at age 8 led her to decades of activism in chronic health in young people, work that is now culminating in a grassroots awareness and community-building initiative, with the Invisible Wave Podcast at its heart. The...
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Introducing - The Invisible Wave Podcast
1 in 4 young adults is living with a chronic medical condition, often invisible to the naked eye. They are, The Invisible Wave. Hosted by Dr. Santi KM Bhagat, a mother of a young adult with epilepsy who founded a non-profit think tank that studied how policies, systems of care, and society…
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About this show
An estimated 1 in 4 young adults in the U.S. are living with a chronic medical condition, many invisible to the naked eye, and posing unique challenges in education, healthcare, the workplace, mental health, and the family.The Invisible Wave Podcast illuminates these shared challenges through highly relatable personal stories from individuals, caregivers, and innovators, and highlights effective grassroots solutions to improve quality of life for this vast, underserved community.*About the Host:*On the first day of her medical fellowship, Dr. Santi Bhagat’s 8-year-old daughter was rushed to the emergency room where they induced a medical coma to stop her first seizure. In that moment Dr. Bhagat crossed the threshold from being a physician to a frightened mother desperate to protect and save her child, and was moved to create Physician-Parent Caregivers (PPC), a non-profit to protect young people with chronic health conditions and their families. Santi has since founded the Anthem Aw
Hosted by
Invisible Wave