Ep. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy episode artwork

EPISODE · Aug 18, 2025 · 32 MIN

Ep. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy

from Well Beyond Medicine: The Nemours Children's Health Podcast · host Nemours Children's Health

Tina Aswani-Omprakash began experiencing symptoms as a child – joint pain, eye inflammation and digestive issues – but no one connected them. Without a diagnosis, health insurance, or support due to the cultural stigma surrounding inflammatory bowel disease (IBD) and Crohn’s disease, Tina endured a long and painful journey to understand her own body.Today, she’s a patient advocate, storyteller and CEO of the South Asian IBD Alliance (SAIA), using her lived experience to support others – especially young people and families – facing similar challenges.Own Your Crohn’sSouth Asian IBD Alliance (SAIA)Guest: Tina Aswani-Omprakash, MPH, CEO, South Asian IBD Alliance (SAIA)Host/Producer: Carol VassarViews expressed by guests do not necessarily reflect the views of the host or management.  Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

Episode metadata supplied by the publisher feed · Published Aug 18, 2025

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Tina Aswani-Omprakash began experiencing symptoms as a child – joint pain, eye inflammation and digestive issues – but no one connected them. Without a diagnosis, health insurance, or support due to the cultural stigma surrounding inflammatory bowel disease (IBD) and Crohn’s disease, Tina endured a long and painful journey to understand her own body. Today, she’s a patient advocate, storyteller and CEO of the South Asian IBD Alliance (SAIA), using her lived experience to support others – espe...

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Ep. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy

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