PodParley PodParley
PodParley
Ep. 26. Shannon's Story- Raising a child with albinism. What is it? What does it mean? episode artwork

EPISODE · Jun 12, 2024 · 50 MIN

Ep. 26. Shannon's Story- Raising a child with albinism. What is it? What does it mean?

from Where Joy Blooms: All things pregnancy, birth and parenthood · host Brittany Harvey and Emily Farley

Today is world albinism awareness day so what better time to share the story of Shannon and her son Drake; who was diagnosed with Albinism shortly after his birth. Like most people, Shannon was completely unaware that her or her husband were carriers for albinism. It wasn't ever something that needed to be tested or brought up. But once Drake was born, he displayed some features related to albinism which made the doctors run some more tests and eventually Drake was diagnosed with OCA1A. Shannon and her husband also found out they are carriers of the albinism gene which means their chances of having a child with this condition was around 1/4. Learn all about navigating this condition. What is means for Drake and his family. What help and support is out there and how difficult it can be to get the proper support for people with albinism. @mrs_gravox Follow us on Instagram: @wherejoyblooms.podcast Email us: [email protected]

What this episode covers

Today is world albinism awareness day so what better time to share the story of Shannon and her son Drake; who was diagnosed with Albinism shortly after his birth. Like most people, Shannon was completely unaware that her or her husband were carriers for albinism. It wasn't ever something that needed to be tested or brought up. But once Drake was born, he displayed some features related to albinism which made the doctors run some more tests and eventually Drake was diagnosed with OCA1A. Shannon and her husband also found out they are carriers of the albinism gene which means their chances of having a child with this condition was around 1/4. Learn all about navigating this condition. What is means for Drake and his family. What help and support is out there and how difficult it can be to get the proper support for people with albinism. @mrs_gravox Follow us on Instagram: @wherejoyblooms.podcast Email us: [email protected]

NOW PLAYING

Ep. 26. Shannon's Story- Raising a child with albinism. What is it? What does it mean?

0:00 50:09

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

Share this episode

Similar Episodes

I'm ok

Mar 26, 2026 ·1m

Food Saved My Life

Mar 19, 2026 ·34m

Eat More Vegetables: The 4 Foods That Beat Ozempic (Naturally)

Feb 18, 2026 ·11m

How to End Heart Disease with Dr. Fuhrman

Feb 11, 2026 ·45m

Revolutionizing Breast Health: QT Imaging, Overdiagnosis, and What to Do Instead

Jan 27, 2026 ·35m

REMIX: Why we over-shop and compulsively acquire, and how to stop, with Dr Jan Eppingstall

Jan 9, 2026 ·61m

Similar Podcasts

MG Show MG Show The MG Show, hosted by Jeffrey Pedersen and Shannon Townsend, is a leading alternative media platform dedicated to uncovering the truth behind today’s most pressing political issues. Launched in 2019, the show has grown exponentially, offering unfiltered insights, comprehensive research, and real-time analysis. With a commitment to independent journalism and factual integrity, the MG Show empowers its audience with knowledge and encourages active participation in the political discourse. Breaking News Show | eTurboNews Juergen Thomas Steinmetz News is relevant to the global travel and tourism industry, human rights and global issues.Breaking news when it happens and only from the source. Eat to Live Jenna Fuhrman, Dr. Fuhrman Our health is our most precious gift and smart nutrition can change your life. Each month, join Dr. Fuhrman and his daughter, Jenna Fuhrman as they discuss important topics in the world of nutrition. Eat to Live will change the way you eat and think about food. French Your Way Jessica: Native French teacher founder of French Your Way Boost your French listening skills and test your comprehension with this one of a kind series of podcasts. Get the chance to listen to a real conversation between native speakers talking at normal speed AND customise your learning experience through carefully designed sets of questions (2 levels of difficulty) available for download at www.frenchvoicespodcast.com. All interviews also come with the transcript. French teacher Jessica interviews native speakers of French from around the world who share a bit of their life and passion. Where else would you meet in one same place a French yoga teacher based in Melbourne, a soap manufacturer from Provence, or a couple cycling around the world?

Frequently Asked Questions

How long is this episode of Where Joy Blooms: All things pregnancy, birth and parenthood?

This episode is 50 minutes long.

When was this Where Joy Blooms: All things pregnancy, birth and parenthood episode published?

This episode was published on June 12, 2024.

What is this episode about?

Today is world albinism awareness day so what better time to share the story of Shannon and her son Drake; who was diagnosed with Albinism shortly after his birth. Like most people, Shannon was completely unaware that her or her husband were...

Can I download this Where Joy Blooms: All things pregnancy, birth and parenthood episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.
URL copied to clipboard!