Ep. 27: Reflecting Resilience

At Nemours Children’s Hospital, Florida, associates (staff) and patients celebrated “Well Beyond Medicine Day" with some very honored guests. These VIPs stopped by the podcast to talk about osteogenesis imperfecta (OI), a genetic disease in which bones fracture (break) easily, often with no obvious cause or minimal injury. Detroit resident Stephen Sheehy is a remarkable man who answered the Nemours Children's Health call for an adult male with OI to be part of the Nemours Children's "Reflections” ad campaign. Already lined up was 4-year-old Nemours OI patient MJ Strickland. Guest host Cheryl Munn boarded our mobile Well Beyond Medicine podcast truck to talk with Steve, MJ’s mom Alex Rice, and the leader of MJ’s care team, Nemours orthopedic surgeon Dr. Alec Stall about OI: how it’s diagnosed and treated today versus when Steve was growing up in the ’70s and ’80s; barriers faced and overcome; the importance of community connection; and how Steve became a model for Nemours.Host: Cheryl Munn Producer: Carol VassarGuests: Stephen Sheehy, husband, father and adult living with OIAlex Rice, mom to Nemours Children's Health OI patient MJAlec Stall, MD, Vice Chair, Department of Orthopaedics and Orthopaedic Surgeon, Nemours Children's Hospital, FloridaViews expressed by guests do not necessarily reflect the views of the host or management.  Subscribe, review or let your voice be heard at NemoursWellBeyond.org.