Ep 4: ASH Research Collaborative & Patient-Centered Clinical Trials

The Sickle Cycle Podcast features LaTasha Lee, Senior Manager of Partnership Engagement Sickle Cell Disease Clinical Trials Network and Shauna Whisenton, Manager of Sickle Cell Disease Community Engagement from the American Society of Hematology Research Collaborative (ASH RC). ASH RC is a non-profit organization that was established in 2018 to foster collaborative partnerships to accelerate progress in hematology. The first research initiative of ASH RC is the Sickle Cell Disease Clinical Trials Network which has the goal of optimizing the conduct of clinical trials research in Sickle Cell Disease. Dr. Lee and Ms. Whisenton discuss the need for community engagement and the importance of clinical trials. Ms. Whisenton unique perspective provides a personal insight regarding participation in a clinical trial which cured her of Sickle Cell Disease (SC). The ASH RC is improving the lives of people affected by blood disorders and more information can be found at the following link: https://www.ashresearchcollaborative.org.