Ep. 73 Living with Courage and Hope with Christa Cagnon

In this episode of 'The Beauty In The Mess,' we sit down with Christa Gagnon, a rare disease advocate and founder of Going with the Gagnons. Christa shares her transformative journey after her daughter, Jordan, was diagnosed with Giant Axonal Neuropathy (GAN), a terminal illness. She discusses the challenges of living with a terminal genetic condition, the stages of grief, and how she and her family navigate life day by day. We also learn about Jordan's dreams, their joint clothing line, and the importance of community and advocacy.Christa Gagnon is a woman who wears many hats. Being blessed with a daughter with a terminal illness has shaped the trajectory of her career and passions. Her daughter is her world and she is on a mission to bring awareness and find a cure. She is an advocate and knows the importance of her voice. She has been an entrepreneur and business owner for the past 20 years and just recently stepped into the nonprofit space as a brand manager. It is Christa's goal to create community and bring people together. She shares her experience with the pain and grief that comes with being a caregiver to help others know they are not alone. She is excited that she has reached the portion of her life where she is able to give back and help others.02:10 Introduction02:16 Krista's Mission02:36 Stages of Grief02:41 Journey to Diagnosis03:01 Living with GAN03:41 Raising Jordan03:52 Daily Life and Acceptance07:48 Diagnosis Impact on Family12:31 Jordan's Dreams and Projects22:08 Support and Advocacy23:51 Clothing Line and Affirmations27:53 Words from Jordan30:22 Contact and FollowConnect with Christa Gagnon:WebsiteInstagramTik Tok Let's Connect!Facebook: The Beauty in the Mess podcast InstagramWebsiteLinkedIn   Hosted on Acast. See acast.com/privacy for more information.