EPISODE · Oct 31, 2021 · 46 MIN
Ep 79 Claire Riley - Living like tomorrow matters with a diagnosis of MS
from Futuresteading · host Jade Miles
Clare is so much more than her MS diagnosis but when she contacted us, eager to share how living like tomorrow matters plays out after a diagnosis, we realised we'd never considered her perspective on the show and in that, our privilege became acutely apparent.40% of Australians have a chronic illness yet so often it goes unacknowledged. With a pod of her own and a young family she is building awareness by sharing her every day reality while building solidarity for those in similar shoes. This is her story. Show NotesSuburban childhood that was filled with camping and hiking trips that set her up for an outdoor lifeFinding her people at Wollangarra What is Wollangarra and how it defined her lifeGetting a diagnosis of MS Taking multiple years to accept her diagnosisNeeding more words for pain to describe what life with MS is likeLiving like tomorrow matters for those with a life long health diagnosisWhy its not always possible to make big moves on sustainability actions "If I can grow and eat a tomato plant from seed - that’s a huge achievement"Getting a teaching degree for the single reason to work at falls creek primary schoolRedefining herself as someone with a diagnosis"I’m still the same person I was, I just have another chapter"Women are more likely to be diagnosed so the way MS is communicated is very story-likeLooking after yourself with MS is a full time job Not having the luxury of ignoring self care needs Fitting in the necessary exercises around the every day needsEmbracing being in the cold - swimming every day in the Melbourne bayBeing hopeful because of the way her son responds to the world around you Success sits in daily satisfaction and making a difference to all things big and small, moment to momentThe value of giving yourself a break - Go gentlyTake one step - you don’t have to do all the thingsThe open arms of the MS community which encourages conversation, open grief and removing shame40% of the population have a chronic illness but we are so shamed by this that we don’t talk about it publiclyPeople with disabilities are not necessarily ignored but they are often not seen Planning her days around her health but not wanting to live like its all there is ReferencesWollangarraMS understoodThanks to our podcast partners:Wwoof AustraliaNutrisoilBuy the BookFuturesteading - Live Like tomorrow mattersSupport the show
What this episode covers
Clare is so much more than her MS diagnosis but when she contacted us, eager to share how living like tomorrow matters plays out after a diagnosis, we realised we'd never considered her perspective on the show and in that, our privilege became acutely apparent. 40% of Australians have a chronic illness yet so often it goes unacknowledged. With a pod of her own and a young family she is building awareness by sharing her every day reality while building solidarity for those in simil...
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Ep 79 Claire Riley - Living like tomorrow matters with a diagnosis of MS
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