EP121: What To Do If You Child Has A Rare Disease

Interview with Will Hoffman / Rare Disease AdvocateHOSTED BY PAUL SULLIVANWill Hoffman is a runner and when his son was diagnosed with NF - an incurable genetic condition that causes tumors to grow on nerves throughout the body - he ran towards the problem. With his son, with others, he tried to figure out what he could do and that was to raise money. But he had other children and had to balance that. Learn what he does to make it all work. ---Get our free newsletter covering all things fatherhood delivered straight to your inbox: https://thecompanyofdads.com/thedad/