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Ep75: FPWR with Susan Hedstrom episode artwork

May 5, 2021 32 min

Ep75: FPWR with Susan Hedstrom

from Walking with Freya Hosted by Anne Fricke

The Foundation for Prader-Willi Research. https://www.fpwr.org Donate to FPWR! https://www.fpwr.org/donate The Global PWS Registry https://pwsregistry.org Walking with Freya on Instagram https://www.instagram.com/walkingwithfreya/ PWS Community Challenge Facebook Group https://www.facebook.com/PWSCommunityChallenge

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What this episode covers

I would imagine that most of us in the PWS world have now heard of FPWR – the Foundation for Prader-Willi Research. If you haven’t, this episode is a great start. I spoke with Executive Director, Susan Hedstrom, to learn more about FPWRs foundation, intention, and actions. I also learned how families can participate in clinical trials, creating a One Small Step fundraiser, and the importance of the Global Registry. If someone you love has PWS, I highly recommend learning more about FPWR and how you can help raise money and awareness. You can learn more about FPWR at fpwr.org.

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Ep75: FPWR with Susan Hedstrom

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