Episode 004 - EveryLife Foundation, the STAT Act and Rare Disease Week

Welcome to Episode 004 of the Beyond the Diagnosis Podcast. In this episode we talk with Jamie Sullivan and Shannon von Felden from the EveryLife Foundation about the STAT Act, the upcoming Rare Disease Week and the impact that both of these initiatives have had and will have on the rare disease community. We also welcome Deanna Fournier, Executive Director of the Histiocytosis Association as she shares about the Association’s involvement in several of EveryLife Foundation’s working groups. Let us know what you think! Leave us a review, drop us a comment or email Kathy directly at [email protected]. Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback! www.everylifefoundation.org www.statact.org www.rareadvocates.org/rdw Music: “Heroes” by Noah Smith