Episode 012 - Rare Disease Day 2022

Welcome to Episode 012 of the Beyond the Diagnosis Podcast. In this episode Kathy talks with Debbie Drell, the Director of Membership for the National Office for Rare Disorders or NORD. Learn about Rare Disease Day 2022, how its impacted the rare disease world over the years and how you can get involved in Rare Disease Day this year. Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected]. Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback! Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released. Resources mentioned in the podcast: HA Rare Disease Day Info: https://histio.org/get-involved/raise-awareness/ NORD Virtual Event: https://rarediseases.org/rare-disease-day/rare-disease-day-register/ Share Your Story: https://rarediseases.org/rare-disease-day/rare-disease-day-share-your-story/ Light Up for Rare: https://rarediseases.org/how-to-light-up-for-rare-rare-disease-day-2022/ General Resources: https://rarediseases.org/rare-disease-day/resources/ EURORDIS: https://www.eurordis.org/ Music: “Heroes” by Noah Smith