Episode 069 - Navigating Social Security & Disability Benefits for Adults: Compassionate Allowance Expansion for Histiocytosis

Welcome to episode 069 of the Beyond the Diagnosis podcast.  In this episode, Deanna Fournier guest hosts interviews with Sandra Lamb and Jane Johnson, two experienced disability representatives, about navigating the Social Security Administration (SSA) for individuals with histiocytic disorders, specifically adults. They discuss the recent expansion of the compassionate allowances list, which allows for expedited disability requests and provides access to benefits such as Medicaid and Medicare, eligibility criteria for applying for Social Security benefits, and the role of disability representatives. They also address the process of appealing denials and provide contact information for those seeking assistance.  With a series of questions posed by the histio community, we know this is an episode you will find extremely valuable!   Resources mentioned in the podcast:  ·       Applying for Social Security Disability ·       Should I Quit My Job Before Applying for Disability? ·       Social Security Eligibility Follow the Histiocytosis Association on social media: Facebook: https://www.facebook.com/histio Twitter: @histiocytosis Instagram: histiocytosis_association YouTube: https://www.youtube.com/@Histiocytosis   Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].  Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!   Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.   We would love it if you would consider supporting this podcast financially so we can continue to bring you relevant and timely information while on your histio journey.  To learn more visit https://podcasters.spotify.com/pod/show/histio/support   Music: “Heroes” by Noah Smith