Episode 070 - Navigating Social Security & Disability Benefits for Children: Compassionate Allowance Expansion for Histiocytosis

Welcome to episode 070 of the Beyond the Diagnosis podcast.  In this episode, Deanna Fournier guest hosts interviews with Sandra Lamb and Jane Johnson, two experienced disability representatives, about navigating the Social Security Administration (SSA) for individuals with histiocytic disorders. Part 2 of a 2-part series, this episode focuses specifically on children. They explain the eligibility criteria for applying for Social Security benefits, the role of disability representatives, and the importance of maintaining records. They also address the process of appealing denials and provide contact information for those seeking assistance.   Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].  Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!   Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.   We would love it if you would consider supporting this podcast financially so we can continue to bring you relevant and timely information while on your histio journey.  To learn more visit https://podcasters.spotify.com/pod/show/histio/support    Resources mentioned in the podcast: ·       National Association of Disability Representatives ·       SSA Office Locator ·      Should I Quit My Job Before Applying for Disability? ·      Social Security Eligibility ·       Contact Jane at Foothills Disability – 1-828-394-9657 or [email protected]  Follow the Histiocytosis Association on social media: Facebook: https://www.facebook.com/histio Twitter: @histiocytosis Instagram: histiocytosis_association YouTube: https://www.youtube.com/@Histiocytosis   Music: “Heroes” by Noah Smith